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SECRETIN:
Towards a Clearer Picture Dr David OConnell
The Tommey family approached me in October
1998, with a view to giving their son secretin as a
treatment for his autism. A friend of the family,
Dr Mark Collins, a Consultant Psychiatrist at The
Priory Hospital, Roehampton, was aware that I
sometimes undertook off-label prescriptions (I
have previously given patients treatments before
they were officially licensed when I knew they
worked and were safe), and suggested they
contact me with a view to giving Billy the
injection.
After doing some research, I felt there was
enough evidence from cases in the USA, to
attempt this treatment. As you are aware now,
the results were amazing. Of course once the
media got hold of this news, word quickly spread.
Some nine months later, the results continue to be
amazing for the majority of those who have had
the injection. It takes a while to compile accurate
figures, but at this stage, we can certainly say that
following the first injection of secretin over 90%
show an average improvement of 33%. This is of
course very encouraging, and makes a massive
difference to family life and opens up so many
more opportunities to the child. Some of the few
who do not show an improvement have
persevered to have a second injection, and again
though early to be conclusive, it seems that they
benefit from this second infusion.
To date I have used only Ferring secretin, as I
believe this is the gold standard; it was this form
of secretin that was used when the discovery was
made in the USA. We have no data as of yet on
the effectiveness of other forms of secretin.
Initially, we felt that it was the children with
digestive disorders who would particularly benefit
from this treatment; it made sense that this would
be so, as secretin is a hormone involved in the
digestive process. However, I feel that we have
plenty of evidence to show that those with social
and communication problems benefit no less than
those with digestive problems. So, to answer a
very frequently asked question, yes, your child is
just as likely to benefit from secretin treatment if
he/she has autistic traits, but no digestive
problems.
We are busy compiling and preparing accurate
results, and hope over the next few months to be
able to give a clearer picture.
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