Now, a year later, we have come
so far with him and most
recently have seen
a huge improvement after
Auditory Integration Training
(AIT) treatment. The best advice
I was given was not from the
NHS, but from a mother of an
autistic boy. She stressed the
importance of early
intervention.
Her son had made
a huge progress using Lovaas,
and although I realised that
Lovaas was probably not the
best route for Harveys
problems, I knew I had to take
action. I immediately got him
into Blossom House, a private
language school. Fortunately I
had financial support from
family and friends. I also did a
sponsored swim with three
friends which raised the money
for an extra day. It is incredible
how amidst the turmoil and
grief of realising you have a
special child you can find
enormous reserves.
He went for
two days a week and the rest of
the time he was in a small
mainstream nursery. Harvey
started talking within a few
months and as his language fell
into place his imaginary play
started to develop. However,
right up until the AIT, he was
still having immense difficulty
at school. He wouldnt
concentrate or focus. He was
having tantrums, he would give
up very easily saying I cant do
it , its too hard for me.
In fact
on the morning before AIT
started we went to the school
sports day, we were so
depressed seeing him giving
staff the run around, we felt
there was little chance
of him
surviving
mainstream school.
As we went through this year, I
found my life course was
changing. I did a course on
brain gym. I picked up a book
about children with special
needs called Dancing In The
Rain edited by Annabel Stehli,
the mother of an autistic girl,
cured by AIT (Anglo American
Books 01267 211880). It was
collection of stories of childrens
responses to AIT. As I read
through the stories I kept
thinking thats Harvey. I was
nervous about it as some of the
stories spoke of regression but
when I found out how it
worked, it related to everything
I had been learning on the
brain gym course and it made a
lot of sense to me.The child
listens to music at 80 decibels
on headphones with certain
frequencies taken out. This
exercises the vestibular system.
Then halfway through the
treatment, you take the left ear
down to 50 decibels making the
right ear the dominant ear. So
when the child hears they
process through the right ear
which connects directly to the
left language side of the brain.
We decided to go ahead. We
found the place called the Rêve
Pavilion which carried out AIT
at a very reasonable price. We
went to see the
psychologist
Elizabeth
Thomas who attempted an
audiogram on Harvey which
was impossible.
Harvey would
not wear the headphones and
didnt understand the concept
of hearing a sound and pressing
a button. I felt very
downhearted as I felt that
maybe he was too young.
Elizabeth put no pressure on me
but said that she thought
Harvey would be a good
candidate for AIT. She showed
me how to use the
AudioKinnetron. I was also
nervous about this as I would be
administering the treatment
myself. My anxieties were soon
overcome as it is an extremely
easy machine to use . The Rêve
Pavilion knows how hard it can
be for parents financially and so
dont charge when supervision
isnt necessary.
Also as it can be
quite hard getting a child to sit
still with the music, you are free
as a parent to be firm, bribe etc
without inhibition. Below is a
diary of the treatment.
DAY 1
Prayed for a miracle today.
Harvey had his sports day and
although some structure is
there it is very difficult for
him. Chasing around cheekily
just not understanding that
he needed to sit down and
wait his turn. He just does his
own thing. This is so
worrying in respect of
mainstream school. I hope
Dorset (soon to move there)
will offer the support he
needs and Im praying that
this AIT will work. His first
session went OK. We had
really prepared him using the
headphones with the
computer. We have allowed
him on the computer too
much, but it was worth it as
he put the headphones on
easily unlike in his audiogram
session.
DAY 2
Harvey was very chatty, jolly. First session
went well with lots of crisps.
DAY 4
Settled well but a bit
hyperactive after the session.
Second visit - he seemed to
be really getting into the music
(Bob Marley). More wilful today,
not so compliant. We felt a bit of
regression today, but still lots of
good stuff.
DAY 3
A really good day! He seemed a bit tired this
morning, bit puffy around the eyes. A bit tearful
on arrival but lay down straight away. We didnt
need to distract him so much today. We started him
at 70 decibels, then after 5 minutes moved him to
80, he didnt seem perturbed but did lots of eye
squeezing. He asked will this make my ears
better? He was pleased with lots of cheers and a
present at the end. This was the best, most
relaxing, day I had ever had with him. Harvey was a
very good boy on the second session. He likes me
to lie there with him and cuddle him. Afterwards
we went to my mothers house where he had a
long conversation about sharks. We were all
stunned and very excited. He was really alive and
vibrant singing songs, dancing along, he seemed
very happy. He was confident in speech, had direct
eye contact and a sense of humour. A fantastic day.
Thank God!
DAY 5
In between sessions, he had a Sunflower
Method consultation. (Also offered at
Rêve, we are still doing this, I will write
an update when I know more.) He was
brilliant, he co-operated totally and
seemed to understand what was asked of
him. He would never have done that
before, we were so pleased. After the
second session, Harvey was tired.
DAY 6
Today we made the right ear
dominant. In the break we went to a
castle, all these trips have become a
lot easier. Harvey seems confident,
but a bit rebellious today. Much
happier about the second session, he
just accepts it. Its as if he knows its
making him better. A good day, but I
want more progress. I feel the days
are running out, I have lots of little
miracles and Im impatient. However,
I know from reading that the results
continue to develop even after
treatment stops.
DAY 7
I was very tired and emotional
today. I took him on my own.
Its very moving going through
these changes in your child.
There is so much desperation
and hope, and we only have
three days left. I must
remember that progress
continues, I suppose that if you
make the right ear dominant,
then every time he uses it he is
building stronger neural
pathways to the left brain.
DAY 8
Took him alone again. Had a wonderful
conversation in the car with him, it lasted
about 20 minutes. A far cry from the one
question, one answer before.You dont have
to talk so slowly, or repeat things anymore.
Very hungry and thirsty today. At the park we
saw baby ducklings. He said, This one is my
favourite. He has not understood the concept
of favourite until now. A very positive day.
DAY 9
Harvey found the second
session hard today. I think hes
had enough of it. Drank a lot.
DAY 10
Last day, its been an amazing week. We are all
very tired but I am hopeful for Harvey. He has
made so much progress in 10 days. He is a
different boy from the boy at sports day. He
came in this morning and asked if he could go
down and watch TV. He put the computer on
alone and got into a maths programme, spelling
maths to do so. The last few days he has had
more hunger and thirst, and I havent noticed
him walking on toes so much. We feel he has
improved so much, we feel like shouting it from
the rooftops to every parent out there with a
child with problems. We also know that these
children are all so individual, what works for one
child may not for another. I have heard a few
people say they have heard mixed reports
about AIT. My only advice would be to read
Dancing In The Rain and decide for yourself. If
you do decide to go for it, prepare your child by
using headphones the week before.
It is now 5 weeks since our
AIT session and Harvey has
continued to improve.
Everyone we know has
noticed a huge difference in
him. He responds to
everything you say, you can
speak at normal speed, he is
easy company, has far fewer
tantrums and his self-esteem
has grown. He loves books,
sings songs, joins in, interacts
with other children and
initiates conversation all the
time. He still has some sound
sensitivity but I think this is
more habit than pain.
Yesterday, he sat right in the
middle of screaming children
who were watching Punch
and Judy with no problems.
Life is much, much easier since
AIT. I have such belief in
Harvey and I am full of hope
for his future.