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Will He or Won't He Eat It? Kathy Gold
But why are my children on this
very strict gluten and casein
(milk protein) free diet? If
youve had your diagnosis for a
while you'll probably have come
across Paul Shattocks work up
at the Autism Research Unit in
Sunderland. If youre new to all
this its a good place to start.
They produce little booklets
explaining their work and keep
a very informative website
(osiris.sunderland.ac.uk/autism/
aru.htm).
The basis is that autistic children
have a damaged gut which
allows some food proteins
through in a partially digested
form called a peptide (this may
also be due to an enzyme
deficiency). These peptides have
an opiate-like effect on the
brain (think morphine or
heroin). Until the gut problems
can be sorted out by the
medical profession, parents
have put their children on
gluten and casein free diets and
many have reported
improvements in their children.
The best way to find out if your
child is suffering from this
problem is to contact the
Autism Research Unit and ask
for a urine test. They are a small
unit and very busy so you may
have to wait a while for the
results. I did the test, started
the diet and would have put
foods back if the results had
come back negative. Once you
know this may be a problem it
is very difficult to keep feeding
your child toast. Its not a good
idea to start both diets at once
overnight as you could end up
with a severe reaction similar to
going cold turkey. Its better to
do one for a week or so and
then the other and keep a diary
of the reactions.
So what do you actually feed
them? To start with you need to
read labels, lots of them. Get
hold of Lisa Lewiss book Special
Diets for Special Kids from
Jessica Kingsley Publishers (tel.
0171 833 2307) for a list of
ingredients to avoid and look at
the website (www. gfcf.com). In
the UK, Safeways supermarket
mark all their own brands
suitable for gluten free and
cows milk free diets. Casein is
present in all milk, goats etc
and it should all be avoided.
Other supermarkets will send
you a gluten free booklet and
one for dairy free and you have
to cross reference. If you can
get a referral to a dietician to
help balance the diet it would
be great. Some doctors have
been convinced of the value of
the diet and will give you some
foods on prescription.
Theory out of the way youve
still got to produce three meals
a day and it isnt easy. Ive spent
years teaching cookery so I
should be better at it than I am.
Basically my two eat chips, chips
more chips and for a change
alphabites! McCains Microwave
chips are OK and team up with
organic ham, omelettes, tuna
fish, and Heinz baked beans for
lunch. Beans are a real treat, as
I have to keep the tomatoes in
Daniels diet to a minimum.
They will eat: fried fish with a
gluten free batter on them or
home-made fish fingers using
Claras kitchen breadcrumbs. Stir
frys and rice - Daniel picks the
meat out. Risotto, Meatballs,
and having now discovered
Allergy Cares gravy powder we
are back on the roast dinners
and casseroles. Ive even
produced Yorkshire puddings
with the Tru Free flour No. 7
although I would hardly call
them light and fluffy. Beware
that some stock cubes are not
gluten free. I use Kallo yeast
free stock cubes. They also like
spaghetti bolognaise with rice
spaghetti and my local organic
butcher makes me 100% meat
sausages.
I havent cracked the bread yet
and we've tried most of them.
Daniel likes the Barkaret Rice
bread toasted but its so dry I
put the Pure margarine on both
sides. Lifestyles PKU bread is OK
but the children werent
impressed however it made
good breadcrumbs. They do like
Lifestyles PKU pizza bases and
their muffins. The latter come
individually sealed for lunch
boxes and were brilliant on
holiday for those teashop stops
that never have anything
gluten free.
Im on a gluten free diet as well
so I tend to keep a gluten free
house and I cook for the whole
family so my husband has to try
all these foods. Hes still coming
home for tea although he has
been indulging in soda bread at
work and my friends now invite
him round for toast rather than
a drink. If youre starting out
good luck and if youve been
juggling these strange foods for
a while let us know your secrets.
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