Early in 1999 my son Aidan, aged four, was diagnosed with a Social and Communication Disorder. He has been attending a Child Development Centre in Bracknell, Berkshire and has been seen by a whole host of professionals. Over this last year Aidan has made significant progress in his speech and behavioural problems
After reading an article about Dr Michael Tettenborn, work with dairy free diets at the Frimley Childrens Centre, we decided to get a referral from our GP. At this time Aidan had severely delayed speech, general developmental delay, hyperactivity, poor eye contact, poor concentration and lack of imaginary play. He walked or mostly ran on his toes and was always bumping into objects. Consequently his forehead was covered in bumps and bruises. Aidans behaviour revolved around chewing paper especially toilet paper. He would wet it, chew it into a ball and discard it, usually all over the house and then start again. This activity caused untold problems for the rest of the family, especially when we had to hide the toilet rolls!
favourite activity was watching videos and looking at books, magazines
and leaflets about trains. Aidan also loves bags, he collects his prized
possessions and puts them in carrier bags.
Also at this time I was really fed up with Aidan stealing and eating great quantities of sugar and sugary items. So I got rid of all the sugar in the house and wow did we see a change in Aidan over the next four weeks. At first Aidans behaviour got a lot worse, lots of crying and tantrums, and we couldnt take him near a shop that sold sweets without having a major I want screaming session. This did get better over the following weeks after the withdrawal symptoms settled down. The most amazing aspect was the onset of speech it came on in leaps and bounds. He went from ten sounds and words to 50 words and indeed putting two and three words together. His eye contact got better and the hyperactivity decreased. These changes were apparent to everyone concerned. We updated Dr Tettenborn and explained that we had also cut out sugar from Aidans diet with dramatic results. Dr Tettenborn then explained about an anti-fungal treatment for Candida Albicans Syndrome (thrush) in the gut, a symptom of which is a craving for sugar. Dr Tettenborn suggested a low sugar, low yeast diet. To control any candida that may be present in the gut we could start Aidan on nystatin.
a four-week trial on this, Aidans mood swings were still unpredictable,
but the speech continued to improve. At the next appointment we relayed
our experiences and Dr Tettenborn suggested another drug, called diflucan
to be used in conjunction with the nystatin. Diflucan is absorbed into
the bloodstream, unlike Nystatin, which coats the lining of the mouth
and digestive tract but is not absorbed by the body.
Unfortunately, the use of this medication has not helped with Aidans bowel problems and he is still on medication for constipation. We have now been referred to the Royal Free Hospital in London and have seen a Dr Simon Murch. He ordered an X-ray of Aidans intestines and bowel, which were totally blocked and we were given a prescription for Liquid Paraffin and Sodium Picosulphate. This cleared Aidans system in next to no time and we found this helped his appetite and behaviour. Dr Murch also advised us to get the Urinary Peptide Test done through Sunderland University.
The test showed a high IAG level, which suggests a permeability of the intestinal wall and peaks, which suggest peptides derived from gluten. We will be discussing these results with Dr Murch at our next appointment. Over the last eight months we have seen many good changes in Aidan which we feel have helped him to take up his place at our local primary school. He has the help of a support assistant and inclusion in the Schools Speech and Language Resource. Aidan still has behavioural issues that fluctuate daily but he has made significant progress, although there are problems still to be addressed.